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| ID | Title card | Description card | Disease state | State | Preferences | Group card landing page (field_group_card_landing_page:delta) | Delta card | Description section | Title section | Border color | Custom color | Resources |
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| 7482 | Chronic conditions at work |
Feel more confident navigating the workplace with your chronic condition. |
Attention deficit hyperactivity disorder (ADHD), Fabry disease, Gaucher disease, Hereditary angioedema (HAE), Post transplant cytomegalovirus (CMV), Short bowel syndrome | How to talk to others about a chronic condition including family and work | 1 | 0 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition, How to talk to others about a chronic condition including family and work, Nutrition and exercise, Mental health, Information about the Australian healthcare landscape, Support children with chronic conditions, Educational resources for caregivers, Connect with others going through a similar situation | |||
| 7484 | Communicating with doctors |
What you can say and do to get the most out of your healthcare appointments. |
Attention deficit hyperactivity disorder (ADHD), Fabry disease, Gaucher disease, Hereditary angioedema (HAE), Post transplant cytomegalovirus (CMV), Short bowel syndrome | How to talk to others about a chronic condition including family and work | 1 | 1 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition, How to talk to others about a chronic condition including family and work, Nutrition and exercise, Mental health, Information about the Australian healthcare landscape, Support children with chronic conditions, Educational resources for caregivers, Connect with others going through a similar situation | |||
| 7465 | Family and friends guide to Fabry |
Discover how family and friends can help support people living with Fabry disease. |
Fabry disease | Support others living with a chronic condition, Support children with chronic conditions, Educational resources for caregivers | 0 | 0 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition | |||
| 7490 | Jargon Journal |
A dictionary of simple definitions for healthcare and therapy terms, designed to help you navigate the healthcare landscape. |
Attention deficit hyperactivity disorder (ADHD), Fabry disease, Gaucher disease, Hereditary angioedema (HAE), Post transplant cytomegalovirus (CMV), Short bowel syndrome | Information about the Australian healthcare landscape | 1 | 4 | #000000 | 0 | Information about the Australian healthcare landscape | |||
| 7473 | Living with Fabry |
Learn tips to try to help manage Fabry symptoms and support a healthy lifestyle. |
Fabry disease | How to talk to others about a chronic condition including family and work, Connect with others going through a similar situation | 0 | 4 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition, How to talk to others about a chronic condition including family and work, Nutrition and exercise, Mental health, Information about the Australian healthcare landscape, Support children with chronic conditions, Educational resources for caregivers, Connect with others going through a similar situation | |||
| 7486 | Navigating healthcare |
Understand how Australia's healthcare system can work for people with a chronic condition. |
Attention deficit hyperactivity disorder (ADHD), Fabry disease, Gaucher disease, Hereditary angioedema (HAE), Post transplant cytomegalovirus (CMV), Short bowel syndrome | Information about the Australian healthcare landscape | 1 | 2 | #000000 | 0 | Information about the Australian healthcare landscape | |||
| 7471 | Parents' and carers' guide to Gaucher |
Discover how you can help support people living with Gaucher disease. |
Gaucher disease | Support others living with a chronic condition, Support children with chronic conditions, Educational resources for caregivers | 0 | 3 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition | |||
| 7477 | Personal stories - Fabry disease |
Delve into personal narratives and stories shared by individuals who have firsthand experience with Fabry disease. |
Fabry disease | Support others living with a chronic condition, How to talk to others about a chronic condition including family and work, Educational resources for caregivers, Connect with others going through a similar situation | 0 | 6 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition | |||
| 7479 | RARE Portal - Rare Voices Australia |
The Rare Awareness Rare Education (RARE) Portal contains current, reliable and straightforward information and resources for all rare disease stakeholders customised for the Australian context. The <a href="https://rareportal.org.au/rare-helpline/">RARE Helpline</a> aims to provide timely access to information and answer key questions people living with a rare and complex disease often face. |
Fabry disease, Gaucher disease, Hereditary angioedema (HAE) | Support others living with a chronic condition, How to talk to others about a chronic condition including family and work, Nutrition and exercise, Mental health, Information about the Australian healthcare landscape, Support children with chronic conditions, Educational resources for caregivers, Connect with others going through a similar situation | 0 | 7 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition | |||
| 7488 | Talking about your condition |
Talking to your friends and family about your condition? Here's what you should know. |
Attention deficit hyperactivity disorder (ADHD), Fabry disease, Gaucher disease, Hereditary angioedema (HAE), Post transplant cytomegalovirus (CMV), Short bowel syndrome | Support others living with a chronic condition, How to talk to others about a chronic condition including family and work, Support children with chronic conditions, Educational resources for caregivers | 1 | 3 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition | |||
| 7475 | Understanding Fabry disease factsheet |
A booklet produced by Fabry Australia, explaining Fabry disease for a newly diagnosed individual and their family. |
Fabry disease | Support others living with a chronic condition, How to talk to others about a chronic condition including family and work, Support children with chronic conditions, Educational resources for caregivers | 0 | 5 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition | |||
| 7469 | What is Fabry? |
Find out about Fabry disease and what it means for you. |
Fabry disease | Support others living with a chronic condition, Support children with chronic conditions, Educational resources for caregivers | 0 | 2 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition | |||
| 7467 | What is Gaucher? |
Find out about Gaucher disease and what it means for you. |
Gaucher disease | Support others living with a chronic condition, Support children with chronic conditions, Educational resources for caregivers | 0 | 1 | #000000 | 0 | Learn more about a prescribed Takeda treatment, Support others living with a chronic condition |