Address book
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ID | Title card | Description card | Disease state | State | Preferences | Group card landing page (field_group_card_landing_page:delta) | Delta card | Description section | Title section | Border color | Custom color | Resources |
---|---|---|---|---|---|---|---|---|---|---|---|---|
7595 | <span style="font-size:24px;">Fabry Australia</span> |
<p>A patient-run non-profit organisation founded in 1994 that supports individuals with Fabry across Australia.<span></span><br /> <ul class="connect-tag"> |
Fabry disease | ACT, NSW, NT, QLD, SA, TAS, VIC, WA | 0 | 1 | #000000 | 0 | ||||
7597 | <span style="font-size:24px;">Gaucher Association Australia & New Zealand</span> |
<p>A non-profit association with the mission to Improve the health and wellbeing of Australian and New Zealander Gaucher patients through community building, education, advocacy, and support of research.<span></span><br /> <ul class="connect-tag"> |
Gaucher disease | ACT, NSW, NT, QLD, SA, TAS, VIC, WA | 0 | 2 | #000000 | 0 | ||||
7599 | <span style="font-size:24px;">Genetic Alliance Australia</span> |
<p>A tax-deductible registered charity, formed in 1988 to provide support and information for individuals and families affected by a genetic condition.<span></span></p> <ul class="connect-tag"> |
Fabry disease, Gaucher disease, Hereditary angioedema (HAE) | ACT, NSW, NT, QLD, SA, TAS, VIC, WA | 0 | 3 | #000000 | 0 | ||||
7601 | <span style="font-size:24px;">HAE Australasia</span> |
<p>A not-for-profit patient advocacy organisation dedicated to serving persons with hereditary angioedema, in Australia and New Zealand.<br /> <ul class="connect-tag"> |
Hereditary angioedema (HAE) | ACT, NSW, NT, QLD, SA, TAS, VIC, WA | 0 | 4 | #000000 | 0 | ||||
7593 | <span style="font-size:24px;">Rare Voices Australia</span> |
<p>Rare Voices Australia (RVA) is the national peak body for Australians living with a rare disease. Established in 2012, RVA works with all key stakeholders to drive the best outcomes for Australians living with a rare disease.</p> <ul class="connect-tag"> |
Fabry disease, Gaucher disease, Hereditary angioedema (HAE) | ACT, NSW, NT, QLD, SA, TAS, VIC, WA | 0 | 0 | #000000 | 0 |